Professor Heazell says cases like Kassadie’s reminds us of the need for more research into pregnancy complications

Tommy’s news, 07/03/2017

We were delighted to hear that baby Kassadie-Maria Conway has defied doctor’s predictions that she would pass away in the neonatal period and is now six weeks old.

Stories like Kassadie’s are why research into pregnancy complications that lead to neonatal death are so vital. Nearly 28% of neonatal deaths in the UK are due to a structural abnormality; but the reasons why some babies develop these problems are still unknown.

We are still unsure what causes stillbirth or neonatal death in many more cases – finding the answers to these questions is vital.

We are working to save parents the anxiety and distress Kassadie’s parents suffered.

Kassadie’s mother Clare was told that her baby was going to be very poorly after a 20 week scan revealed a complex heart condition.

The hospital initially told Kassadie’s parents that she wouldn’t be strong enough to cope with an operation and would likely pass away in the neonatal period.

Kassadie has gone on to defy expectations and is now six weeks old, breathing and feeding on her own.

The hospital has made a U-turn on its original decision and has decided to carry out surgery in an attempt to prolong Kassadie’s life.

‘I hope that this surgery keeps her going and keeps her alive for a long time. She’s my everything, I’d do anything I can for her. Every time I look at her I’m proud of her.’

Kassadie was initially given little chance of survival and went home with her parents for what they feared would be her final few days.

She has since delighted her family and doctors by breathing on her own, feeding and making it to six weeks old, despite being sent home without medication.

‘She is breathing on her own, feeding, and despite being sent home without the medication, she is still here.’

We wish Kassadie and her family all the very best for what lies ahead.

If you want to support Tommy’s research into stillbirth and neonatal death, you can make a donation here. We are so grateful for your support.

If you want to read more about Tommy’s research in neonatal death and how best we can care for women in later pregnancies, take a look at our IMPS study.

If you have been affected by this story and want to talk to someone, our midwives are on hand from 9 – 5, Monday – Friday to provide support, advice and information. You can call them on 0800 0147 800.

You can read the original article here.